Personal experience with searching for options for full-time, high-quality care puts you in a unique position to act as an advocate. You may have found that the resources and support you need are not always easily accessible. With your knowledge of these issues, your voice and opinion matter. The more your state knows about the real need for our model of care, the more likely it will become a reality.
We also invite any caregiver to join Caregiver Nation, a private online community where family caregivers across the country share their experiences, ask for advice, vent and support one another. Go to www.caregivernation.org to join.